Website Last Updated on March 12, 2026
Welcome to Narula's ALS Diary — a personal account of our family's journey caring for our father, who lives with Amyotrophic Lateral Sclerosis (ALS).
Before you explore this website or our YouTube channel (@livewithals), we ask that you take a few minutes to read this disclaimer in full. It matters.
We are not doctors, nurses, or medical professionals of any kind. We are a family — a son, a daughter, and a circle of devoted caregivers — who have spent years learning, adapting, and doing whatever it takes to give our father the best possible quality of life at home.
Everything shared on this website and our YouTube channel comes from lived experience — our observations, our trial and error, our hard-won lessons. It is offered in good faith, with the sincere hope that it helps other families navigating the same difficult path.
A personal diary and caregiving resource based on our own experience with one individual PALS (Person with ALS).
A collection of practical tips, routines, and solutions that have worked for our father, in our circumstances, with our medical team's involvement.
A starting point for conversations — not a substitute for them.
A source of professional medical, nursing, or clinical advice.
A universally applicable caregiving protocol. ALS presents differently in every individual, and what works for one patient may not be appropriate — or may even be harmful — for another.
A replacement for your own medical team. Neurologists, pulmonologists, dietitians, physiotherapists, and palliative care specialists all play irreplaceable roles in ALS management.
1. Always consult your medical team first. Before implementing anything you read or watch here — whether it's a caregiving technique, a homemade preparation, an equipment setup, or a medication approach — please discuss it with your treating doctors and healthcare professionals. Every patient is different, and professional guidance is essential.
2. Do not delay or disregard medical advice. Nothing on this site should be used as a reason to delay seeking medical attention, ignore a doctor's recommendation, or make independent clinical decisions about a patient's care.
3. Medical information changes. ALS research is evolving. Guidelines, best practices, and equipment recommendations change over time. While we make every effort to keep this site updated, some information may become outdated. Always verify with current medical sources.
4. Emergencies require emergency services. In any medical emergency, please contact your emergency medical services or proceed to the nearest hospital immediately. This website is not an emergency resource.
The information on this website and YouTube channel is provided "as is," without any warranty — expressed or implied. Narula's ALS Diary, its authors, and contributors shall not be held liable for any loss, harm, injury, or adverse outcome arising directly or indirectly from the use of, or reliance on, any information, technique, or product mentioned on this platform.
We share all of this because we wish someone had shared it with us when we started. The isolation of home ICU caregiving — the 3 a.m. alarms, the equipment failures, the moments of helplessness — is real. If even one family finds comfort, clarity, or a useful idea here, this effort is worth it.
But please — use this as a companion resource, not a clinical manual. Your PALS deserves the best of both: the warmth of family care and the expertise of medical professionals, working together.