A Typical Day with an ALS Patient
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The Importance of Hygiene in a Home ICU Setup
In a home ICU setup, such as the one we've maintained for my father, hygiene is paramount to prevent infections and complications. The risks are heightened due to the constant use of medical equipment, such as ventilators and feeding tubes/ catheters, and the critical nature of a patient's immune system in such environments. Frequent sanitization of surfaces, diligent handwashing, and a mindful approach to touching medical devices are crucial. These practices protect our loved ones, ensuring they remain safe from potential infections that could further compromise their already fragile health.
Having learned from our experiences, my sister and I became meticulous about cleanliness. We noticed that even trained ICU nurses sometimes failed to meet hygiene standards. With our careful observation and rigorous routines, we've been able to maintain a safe environment, avoiding hospital visits and additional medical complications.
It’s not just about preventing infections but about safeguarding the quality of life for our loved ones in a home ICU setup. This journey has taught us that no one can replace the love and care a family provides, and hygiene is a critical part of that care.
Oral Care
If an ALS patient can't spit out, swallow or open his mouth then a suction machine is required to avoid aspiration of mouthwash. We do our father's oral care with multiple pieces of sterile gauze cloth dipped in the Listerine mouthwash which is diluted with RO water in a 1:4 ratio. An artery forceps is utilized to hold the gauze pieces.
Tracheostomy Tie Change
We change our father's tracheostomy tie at least once daily after sponging or more whenever accidental drooling of saliva or excessive sweating causes the tie to go moist and he feels discomfort.